The caregiving journey is often one of ups and downs. It is not abnormal for caregivers to experience frustration with their caregiving situation and/or their care receivers. When frustration builds and hangs on for longer periods of time, the caregiver is probably experiencing caregiver fatigue or burnout and could benefit from a break. It is not always possible for caregivers to break away from their duties especially in 24/7 care situations. However, it is possible to “get away” from caregiving in small ways. One of these is to take a few moments to breathe deeply to increase the intake and flow of oxygen. Breathing in while counting to 4, holding for 8 counts and then breathing out for 4 counts repeated several times will be very beneficial. Another way caregivers can take a virtual break is to spend a few moments with their eyes closed visualizing a favorite place they have visited or would like to visit. Sound machines that generate the sound of falling rain or crashing ocean waves can be very calming and relaxing. Finally, sitting down with a cup of favorite beverage while listening to favorite music can seem like a vacation. The important point for caregivers to remember is that even a little self-care can make the caregiving journey more manageable.
When we talk about the importance of taking care of yourself so you can take care of your loved one, fall prevention comes to mind. As a caregiver, you need to safeguard yourself, as well as your loved one, against falling.
Did you know falls are the leading cause of injury related deaths for Americans sixty-five years and older?
Falls are preventable and there are many things you can do to reduce the risk. The Arizona Department of Health Services (ADHS) has information on healthy aging with an entire section devoted to fall prevention. Visit www.azdhs.gov to your Google search bar. Click on Falls & Injuries on the left sidebar. Select Falls Prevention Information & Resources from the drop down. Prevent Falls at Home contains tips on how to avoid falls. Included is a list of low-cost items, such as wheelchair seat belts and slip resistant socks, that can drastically reduce the chance of a fall.
As caregivers, we become the eyes, ears and voices for our care receivers. We make sure that their concerns are voiced and that they correctly see and hear all that concerns them. We also lend our eyes and ears to medical professionals who provide care for our loved ones. Because we know more about our loved ones than the medical professionals do, it is important for us to continuously observe our loved ones and communicate changes in their physical, mental, behavioral and emotional health. While we may be tempted to dismiss a change as too slight or subtle to be of immediate importance, observing and sharing even subtle changes can make a huge difference in the care our loved ones receive. This can be done effectively by maintaining a log that gives date, time and type of changes observed. It is also helpful to write down any questions that we may have in connection to the changes we’ve observed. And, finally, we need to listen to the inner voice within us that may be urging us to seek immediate answers to the questions we have. Getting our questions answered as soon as possible could result in keeping our loved ones more independent and living longer.
With an estimated 40 million family caregivers in the U.S., employers are recognizing the value of those who are also members of the workforce. If you are working while caring for a loved one, AARP has resources including a video with tips for talking with your employer. (Copy the URL address into your computer search bar: https://learn.aarp.org/the-working-caregiver .
Be upfront with your employer regarding your caregiving responsibilities. If your company is small, talk with your boss, otherwise, your human resources manager who can tell you about policies and services such as caregivers’ support groups and respite care.
Make suggestions that accommodate your caregiving responsibilities yet are cost-effective for the company. Be creative. Explore options such as flextime, telecommuting, working from home one day a week, and utilizing allocated time off. And some employers are now offering paid leave for caregivers. You can also inquire whether you qualify for the Family and Medical Leave Act.
Many caregivers are caring for loved ones who are dealing with memory loss. According to the Alzheimer’s Association web site, Alzheimer’s is the most common type of dementia accounting for 60% to 80% of the dementia cases. Alzheimer’s progresses rapidly as compared with general dementia that develops slowly. People diagnosed with Alzheimer’s will live an average of eight years after their diagnosis, although some live as long as 20 years. Because the disease robs people of their ability to think and take care of themselves, they will need a lot of assistance which creates a challenging journey for family caregivers. One of the best resources for family caregivers is the Alzheimer’s Association web site which can be found at www.alz.org. This website is packed full of information to help people understand the disease, how it progresses, and risk factors for getting the disease. In addition, the web site features links to the Alzheimer’s navigator of connections to local support services, a virtual library, and information on locating a local chapter of the Association. A helpline is available 24/7 to provide assistance and answer questions. Call 1-800-272-3900 to reach the helpline.
Traveling the caregiving journey can be a very lonely experience. As caregivers realize that caregiving can require a huge amount of time, they often put their own lives on hold to have more time to take care of their loved ones. As a result, caregivers experience a variety of emotions ranging from anger to frustration to regret to guilt and sadness. Many caregivers have discovered that very few people are able to understand what they are going through.READ MORE
Being a caregiver can be overwhelming and stressful. There aren’t enough hours in the day. Tools to keep you organized can make a difference. But, which ones are user friendly, password protected, free, and available across multiple platforms including iPhones, iPads and computers?
AARP has a YouTube video (https://www.youtube.com ): “Apps to Keep a Caregiver Organized” that provides information. Note-taking Apps are like a file cabinet to store your notes. File-sharing Apps are useful to share lists of doctors and medical information with family members. To do reminders can be created on list Apps.READ MORE
Are you a long-distance caregiver caring for a loved one who lives some distance from you? While long-distance caregiving may not be the ideal situation, it is workable if handled correctly and if a number of things are in place. According to AARP, one of the most important things to do is to arrange for communication with medical, legal and financial professionals. You will need to have your loved one fill out and sign forms giving professionals permission to discuss your loved one’s situation with you. Without permission, you will not be able to keep tabs on your loved one’s needs. Also important is to have a discussion with your loved one about his/her finances so that a plan can be developed for long-term care and how it will be financed. Along with this discussion comes the task of establishing a durable power of attorney for financial and health care issues. It is important to exchange contact information with your loved one’s neighbors and to know how to get into your loved one’s home in case of an emergency. For more information on becoming a long-distance caregiver, go to the AARP website at www.aarp.org/home-family/caregiving/care-guides/long-distance-caregiving/#step1.
Caregivers are giving, loving people and often find it hard to justify taking time for themselves. However, this is vital to your well-being and health. The issue is further compounded by the fact that it is often difficult and cost prohibitive to find someone to transfer caregiving responsibility to and allow for a break.
The Caregiver Action Network (CAN), a non-profit organization providing education, peer support and resources, has a National Respite Locator posted on the Respite Care section of their website: https://caregiveraction.org/family-caregiver-toolbox. Click on the state, enter the age of the caree as well as the city and mile range. The search results in a list of facilities, including city, phone and email. Click on the map or view option. The latter provides additional details on the facility.